Sunday, March 27, 2011

Hospital Stay

So it's been some time since my last post. I would like to say it's because I have been feeling well. I wish that were the case. I have since seen a doctor who specializes in CVS and was told to chew my food more slowly so that it would be just about liquid by the time it entered my stomach. Not the answer I was looking for. I am now in the hospital and have been here for some six days or so and now the doctors are telling me I don't fit the profile of typical CVS patient and maybe it is all psychosamatic. How's that for a kick in the stomach. Feeling as sick as I do, is all in my head. Instead of trying to find out what is wrong with me they keep sending in psychiatrists to evaluate me. I feel like I am living in a dream. This has to be a dream, because it is way to inhumane for doctors to treat patients. It's so sad to say that my doctors tell me it;s in my head and all they can do is manage my symptoms. This is what I have to look foward to for the rest of my life. Sounds fun doesn't it. Who wouldn't envy me, not me!

Friday, February 25, 2011

Feeling Good

It's been sometime since my last post, but I was feeling very ill. I think it had to have been one of my worst attacks, but I am happy to report that the storm has past for now.
I have been feeling well for almost five days now. I think part of it has to do with my oldest child going in for knee surgery, and somehow deep inside me my body knows that I have no time to be sick right now. I have been running around like a chicken without a head since my son had his surgery. I must say though, it feels good to be able to take care of my son. I was so afraid I was going to be sick. It's funny how the tables have turned, lol. Now my job is to stay well long enough till my son gets better and hopefully start to really get myself feeling really healthy again.

Monday, February 14, 2011

Valentines Day

I should be full of smiles know that I have a man who will stick by my side through thick and thin but at the moment I'm not. He wants to take me out to dinner tonight and I feel it would just be a waste. I am only going to eat two bites and puke it all up. who wants a girl like that? I wouldn't.
Valentines Day is supposed to be filled with love in the air. Instead I feel like I have been taken over from some demon inside me that won't go away. I can only cry about the way I feel when the kids are not around, I don't want to upset them more than they all already are.  I know that there are other sufferers but not as many as people think and I can not imagine growing old and living this way the rest of my life. There has to be a miracle somewhere.

Saturday, February 12, 2011

More Accupuncture and Woes

So today I am going for another treatment. This will be my third one. I was feeling well initially, but this past week was not one of my best weeks. I was very nauseous and threw up a few times. I went back to see my Gastroenterologist and lost an additional 7lbs since my last visit 4 weeks ago. If I keep going at this rate, there will be nothing left of me. I am so frustrated with this whole disorder. I wish I could just shake it out of me and make it go away for good. I guess I should be thankful it's not worse, and I am not bed ridden. Well I am bed ridden half the time. All I do is lay in bed all day long and feel like a truck has just finished running over my stomach. Sometimes the vomiting is so bad, I look like freckle face from all the broken blood popping all over my face. Let's not forget how my family seems to be falling apart around me. How much more of this am I really supposed to take. I am not gonna take it with out a fight. I will fight for myself and I will fight for my family by any means possible. Even in my darkest moments like now I will still fight.

Monday, February 7, 2011

Always Something

I had gone to the doctor last week and they ran a series of blood work. Well on top of everything I have a severe case of Vitamin D deficiency. The doctor is blaming it on all the throwing up I have been doing. Well at least it gives me a good reason to go on vacation and lay out in the sun.

Acupuncture

I know it has been some time since my last post, but I have had a few ups and downs. I am glad to say mostly ups. My mother has been driving herself crazy thinking that she is going to find a cure for me. She does not seem to understand that that there is no cure, only treatment to relieve the symptoms. She even had me call the Mayo clinic in Jacksonville Florida to see if they could help me, but upon further investigation they didn't know know anymore about Cyclic Vomiting Syndrome than my own primary care physician. Heck, that would have been a real waste of money.
Well one day while I was at the orthopaedic office with my son, my mother asked if they had an acupuncturist. I made an appointment for the following week. Since last week, I have had two treatments, and I am not totally convinced that the acupuncture is making me feel better, but I do feel better. I have only gotten sick twice in the past two weeks, as opposed every other day. Who knows maybe this will work, maybe this is what I needed. Whatever it is, I am willing to try. I might be skeptical, but i am still willing to try alternative methods.

Thursday, January 27, 2011

Snow Day

Today we got about 18 inches of snow here in the tri state area. Luckily I woke up feeling well today. Just a little queasy, but overall pretty good. Kids stayed home from school, and my youngest built an igloo out of a pile of snow. It was nice to get out and enjoy some fresh air. I could have done without the shoveling part. I still feel blue here and there, wondering when the next bout of nausea and vomiting will begin. It seems just when I am starting to feel normal, it hits me all over again. Do I accept my life the way it is, or keep pushing on?
Here are some pictures of the days events.....