Friday, May 27, 2011

Insomnia

It's 2:30 in the morning and I can't seem to sleep for more than 20 min at a time.Today was an okay day. I only threw up once, dusted myself off and went about day. I try distraction, sometimes it works, other I am completely bedridden. People look at me and say you look great. What they don't understand is how sick I am inside, people ask and I try to explain the syndrome as best I can. I get the same answer, each and every time. It's so frustrating, because it's something thats not visible.
I thought having kids was hard, but living with this disorder takes the cake. I try to smile, I try to stay positive, but I never know when I will be sick or how long it will last. I just wish I felt well. It's so depressing at times. My friends and family see the day to day struggles I have, but they don't know what's really going on inside. Besides feeling sick, at times I feel mentally broken.

Monday, May 23, 2011

It's been some time since my last post. I wish I could say it was because I have been feeling so great that I have no time to blog. But that hasn't been the  case.
Since my last post I have been to the Emergency room twice and one overnight stay. I hate going to the hospital and getting poked. I just hate being there, period.
I have started to identify some signs that a CVS episode is coming on. I tend to get extremely tired, cold, and just an overall feeling like I am going to get sick.
I love it when I feel well, I'm active. I cook more often, clean everyday, laundry doesn't get backed up. Everyone is happy, but it is always short lived. I know that lurking around the corner is another cycle of unrelenting nausea and vomiting. This illness has affected my life on so many different levels. I am trying to do my best as a parent, but kids don't often see it that way.
I managed to get a little reprieve and went on a 10 day cruise. It was fantastic except for the kids torturing us. All in all, it was a good time. I did get sick on the cruise, but it was minimal. Stress is definitely a factor and being on vacation, helped me put all my worries behind.
Until next time........

                     Linda